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My Story Begins with CLL

A diagnosis, a rising count, and the search for hope — I didn’t know then that nature itself would change everything.

My journey with Chronic Lymphocytic Leukemia began quietly, with a routine blood test. On October 26, 2015, my doctor noticed my white blood cell count was slightly high at 11.3. Over the years it climbed steadily, and by December 2020, when I was officially diagnosed at NYU Langone, the number had risen to 26.28. Wanting the best care and guidance for the road ahead, I chose to continue my treatment and follow-up at Memorial Sloan Kettering’s David H. Koch Center for Cancer Care. The path has been challenging, but with the expertise of my medical team and my own determination, I’ve been able to navigate it with hope — and ultimately, with discovery.

No “Watch & Wait”

I chose not to wait for my health to decline. Instead, I sought another path — one that honored both science and spirit.

That search first led me to CLL survivor and holistic coach Glen Sabin and then to mycologist Paul Stamets whose work opened the door to the vast healing potential of fungi. A simple TikTok post from Paul caught my eye: cordyceps might support immunity. That spark was all I needed. I began experimenting, and with it, the first steps of my medicine man journey took shape – guided by cordyceps in my fight with CLL.
With hope as my compass, I turned toward cordyceps. From a small grower in the U.S.(Fungi Jon),
I gathered the dried fungi and began a simple ritual: each day, a cup of warm tea, 8 ounces of earth’s quiet medicine. I started on August 22, 2023.
Eight weeks later, the unthinkable became real — my blood showed no trace of leukemia. Every number had returned to balance. No other treatment. No changes to my daily life. Only this one ally.
Cordyceps became more than a remedy; it was a teacher. A doorway into remembering that healing is possible, that nature holds medicines we have yet to fully honor, and that when we listen, the path opens before us.

 

The Benefits of Cordyceps Militaris

For those who wish to explore further, many of the known benefits of Cordyceps are outlined on the Fungi Jon blog and product pages. Science continues to uncover its potential, and while much research is still to be done, the experiences of those who walk this path — myself included — suggest that cordyceps has more to teach us than we yet understand.
My journey is just one story. If it can serve as a spark or guidepost for others seeking healing, then the medicine of cordyceps is already doing its work.

 

The Science (and Ritual) of Brewing Cordyceps Tea

So you’ve got your mushrooms — now how do you unlock their full potential?
Studies at Bastyr University tested fresh vs. dried cordyceps, different water temperatures, and varying brew times. The results were consistent over two years: the sweet spot is dried mushrooms, brewed for 15 minutes, covered. Longer steeping degraded the compounds; shorter times didn’t extract enough.
For daily use, the recommendation is 0.5 grams of 100% fruiting bodies per day. This will yield a potent 8oz cup of tea. You can always adjust the water volume to taste, but the key is simple: proper brewing unlocks the medicine.
What I love about this ritual is that it’s both science and ceremony — a quiet 15 minutes where heat, water, and mushroom transform together into a healing ally.

Cordyceps Tea

To Summarize the Ritual
  • Bring 8 oz of water to a gentle simmer.
  • Add 0.5 gram of dried cordyceps (or a small pinch if you don’t have a scale).
  • Simmer on low for 15 minutes, covered — do not boil.
  • Remove from heat.
  • Strain, if desired.
  • Enjoy the vivid, golden-orange tea, a cup of earth’s quiet medicine.
You can also skip straining and eat the cordyceps as you sip, or save them to stir into rice, soups, or any dish that calls for a touch of their energy.

👉 Purchase dried cordyceps from

Fungi Jon Here!

“My medicine path is also my art. Out of this experience came my award-winning film Cordy — a way to share the story in images, sound, and spirit. I hope you enjoy it.”

Jeff Hinz – Supporting Data from Memorial Sloan Kettering NYC

I was overjoyed when my latest results showed that all my health indicators had returned to normal. From the moment I introduced cordyceps tea into my daily routine, the change was unmistakable: my bloodwork shifted back into healthy reference ranges. This remarkable turnaround was confirmed by two separate lab sessions at Memorial Sloan Kettering, giving me clear validation of what I was feeling in my body.
In exploring further, I discovered fascinating research in the National Library of Medicine. While these studies were not conducted on humans, their findings echoed aspects of my own experience, adding an intriguing scientific layer to my personal journey of wellness.
Below are a few of my charts, which illustrate the dramatic shift that occurred once I began drinking cordyceps tea.

The Group Data

Over the past year, primarily through Facebook, we have gathered a group of over 40 people now using cordyceps militaris to get near 100% remission.

Data collected  is available publicly at this link. 

(Best viewed on desktop)
The data is being shared with a Cordyceps and CLL working group, comprising the CLL Society, NIH, Dana Farber Cancer Institute, Mayo Clinic, University of Cincinnati, Cancer Commons, U of Nottingham, UK, & Dentali Botanical Sciences.
Note – Data sheets are now updated every time participants submit  and approve data. You MUST refresh this site to get the most current data, otherwise you might get a broken link! The date of update  is in the title of the Google Sheet. 
If you’d like to print every data sheet, choose “Workbook” instead of  “Current Sheet”.

The larger group website with information for participation is available publicly at this link. 

Here is the CLLSociety.org’s press release announcing the cordyceps study and next steps: https://cllsociety.org/2025/02/cordyceps-and-cll/

Research Links:

  1. ScienceDirect – Elsevier’s premier platform of peer-reviewed scholarly literature: Synergistic property of cordycepin in cultivated Cordyceps militaris-mediated apoptosis in human leukemia cells.

  2. Nature – Cordycepin disrupts leukemia association with mesenchymal stromal cells and eliminates leukemia stem cell activity.
  3. Frontiers – For the review on Cordyceps’ immune-stimulatory and other biological potentials: Cordyceps spp.: A Review on Its Immune-Stimulatory and Other Biological Potentials.
  4. NIH – For details on the randomized and double-blind clinical trial on the immunomodulatory effects of a mycelium extract of Cordyceps: Cordycepin induces cell cycle arrest and apoptosis by inducing DNA damage and up-regulation of p53 in Leukemia cells.
  5. PubMed Cordycepin induces cell cycle arrest and apoptosis by inducing DNA damage and up-regulation of p53 in Leukemia cells.
  6. Memorial Sloan Kettering Cancer Center – Learn more about Cordyceps, including its uses, side effects, and more.

These links will provide you with partial and remedial insights into the research and discussions surrounding the use of Cordyceps in various health contexts, including its potential effects on the immune system and its application in traditional medicine. If you have any research or insights of your own to share, please contact us.